KAYA

The complexity of informal caregiving for Alzheimer's disease and related dementias in rural South Africa (KAYA)

Manderson L, Brear M, Rusere F, Farrell M, Gómez-Olivé F, Berkman L, Kahn K, Harling G.

This study explores how informal caregiving for people living with cognitive decline or dementia is negotiated, shared, and impacts health and well-being in rural, low-resource settings where formal supports are limited. This protocol provides an example of implementing side panels within successive name generators to dynamically display prior alters, streamlining data collection and reducing respondent burden.