The complexity of informal caregiving for Alzheimer's disease and related dementias in rural South Africa (KAYA)
Manderson L, Brear M, Rusere F, Farrell M, Gómez-Olivé F, Berkman L, Kahn K, Harling G.
Protocol Summary
This study explores how informal caregiving for people living with cognitive decline or dementia is negotiated, shared, and impacts health and well-being in rural, low-resource settings where formal supports are limited. This protocol provides an example of implementing side panels within successive name generators to dynamically display prior alters, streamlining data collection and reducing respondent burden.
Citation
Manderson, L., Brear, M., Rusere, F., Farrell, M., Gómez-Olivé, F. X., Berkman, L., Kahn, K., & Harling, G. (2022). Protocol: The complexity of informal caregiving for Alzheimer’s disease and related dementias in rural South Africa [version 1; peer review: awaiting peer review]. Wellcome Open Research, 7, 220. https://doi.org/10.12688/wellcomeopenres.18078.1
Study PI(s)
MPIs: Guy Harling, Lenore Manderson
Grant Number
R21 AG059145
Protocol Contact
Guy Harling, [email protected]
Edge Generation Methodology
no edges captured
Field(s)
Medicine, Public health, Anthropology
Population
Caregivers of older adults living with cognitive decline
Uses Rosters
Yes
Date Added
Oct 22, 2025