The complexity of informal caregiving for Alzheimer's disease and related dementias in rural South Africa (KAYA)

Manderson L, Brear M, Rusere F, Farrell M, Gómez-Olivé F, Berkman L, Kahn K, Harling G.

Protocol Summary

This study explores how informal caregiving for people living with cognitive decline or dementia is negotiated, shared, and impacts health and well-being in rural, low-resource settings where formal supports are limited. This protocol provides an example of implementing side panels within successive name generators to dynamically display prior alters, streamlining data collection and reducing respondent burden.

Citation

Manderson, L., Brear, M., Rusere, F., Farrell, M., Gómez-Olivé, F. X., Berkman, L., Kahn, K., & Harling, G. (2022). Protocol: The complexity of informal caregiving for Alzheimer’s disease and related dementias in rural South Africa [version 1; peer review: awaiting peer review]. Wellcome Open Research, 7, 220. https://doi.org/10.12688/wellcomeopenres.18078.1

Study PI(s)

MPIs: Guy Harling, Lenore Manderson

Grant Number

R21 AG059145

Protocol Contact

Guy Harling, [email protected]

Edge Generation Methodology

no edges captured

Field(s)

Medicine, Public health, Anthropology

Population

Caregivers of older adults living with cognitive decline

Uses Rosters

Yes

Date Added

Oct 22, 2025

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